Welcome

 

Stargardt’s Connected

invites you to

our next Stargardt’s Networking  Session

                                           What: A FREE Goalball Session led by

                                           Goalball U.K.

                                          When: Saturday 26th May

                                          Time: 2pm-3:30pm

                                          Who: Anyone! All ages welcome to play.

                                          Where: The Castle Centre

                                          2 St Gabriel Walk, London, SE1, 6FG

                                          (Nearest Tube: Elephant and Castle

                                                                                5 minutes walk).

A great opportunity to have fun, take part in a sport and informally meet other people with Stargardt’s and their families.

Friends/Family members are welcome to join in to play too!

To book a place or for any enquiries, contact Bhavna Tailor on: stargardts183@gmail.com

We hope you can join us!

 

 

This website has been designed to provide information to people with Stargardt’s and its family members. It has been set up by a mother of a child with Stargardt’s.

Our story
Our son Ethan was diagnosed with Stargardt’s Disease in September 2015 when he was just 7 years old. It was a condition that I had never heard of and felt dismayed about the lack of overall support and awareness there was for his condition. Since his diagnosis, I have come across some incredibly helpful organisations and resources, and Ethan is a very happy positive boy.

The purpose of this website is to give families affected by Stargardt’s information about the condition, signpost them to different support available, inform of latest research and have a Stargardt’s community which I hope can drive essential research forward.