This website has been designed to provide information to people with Stargardt’s and its family members. It has been set up by a mother of a child with Stargardt’s.

Our story

Our son Ethan was diagnosed with Stargardt’s Disease in September 2015 when he was just 7 years old. It was a condition that I had never heard of and felt dismayed about the lack of overall support and awareness there was for his condition. Since his diagnosis, I have come across some incredibly helpful organisations and resources, and Ethan is a very happy positive boy.

The purpose of this website is to give families affected by Stargardt’s information about the condition, signpost them to different support available, inform of latest research and have a Stargardt’s community which I hope can drive essential research forward.

Forthcoming Event!

This Sunday (24th February 2019) there is a FREE Art/Craft session led by an experienced Art Therapist from the London Art Therapy Centre. An opportunity to make, paint and explore different art materials and informally meet other people affected by Stargardt’s.

Time: 2pm – 3.30pm
Who for: Session for both adults and children
Where: London Art Therapy Centre, Pioneer House, 46 Britannia Street, London WC1X 9JH – nearest tube: Kings Cross (5 min walk)

Spaces are limited. To book a place, or for any enquiries then see full details here: Art and Craft Session Flyer.

More Meetings and Events!