Welcome

 

 

This website has been designed to provide information to people with Stargardt’s and its family members. It has been set up by a mother of a child with Stargardt’s.

Our story
Our son Ethan was diagnosed with Stargardt’s Disease in September 2015 when he was just 7 years old. It was a condition that I had never heard of and felt dismayed about the lack of overall support and awareness there was for his condition. Since his diagnosis, I have come across some incredibly helpful organisations and resources, and Ethan is a very happy positive boy.

The purpose of this website is to give families affected by Stargardt’s information about the condition, signpost them to different support available, inform of latest research and have a Stargardt’s community which I hope can drive essential research forward.